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Hey everyone. If you remember my story (in my post history), I developed empty nose syndrome after my inferior turbinates were amputated clean off without my consent during a nose job. The nose job was supposed to straighten my nose after a severe car accident and improve my breathing, but I can’t sense air anymore after the turbinate amputation, which has left me with suffocation permanently as if I’m drowning underwater 24/7.
How am I still alive? Well, somehow I got the attention of a prominent research university here in the United States. I had a conversation with them and they have made mini turbinates out of adult human stem cells (no they don’t use stem cells from aborted fetuses since adults make stem cells too) , and in order to begin the project fully start to finish to get to human trials, it will cost $4 million approximately. They applied for government funding but were denied due to the rarity of ENS (it’s not rare).
Of course this is a dream come true and keeps me going, but now me and my support group are stuck on how to raise $4 million dollars. How do we do this? How do I go about getting this funding? Any ideas? Should I started a gofundme? Thank you so much for reading and keeping up with my journey.
PSA: if someone wants to donate $4 million I wouldn’t take the money. I’d ask them to contact wake forest university’s institute of regenerative medicine and donate on behalf of turbinate research for turbinate transplants. In case anyone thinks I’m trying to scam as has been implied in a comment below.
TLDR: empty nose syndrome may have a cure but costs $4 million usd
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